She lost one son to a rare genetic disease – now her fourth child has it too: 'I want to hold on to hope'

2026-01-27 - 23:31

She slept in hospital intensive care units and navigated family outings with a breathing machine – all for her late son, who had spinal muscular atrophy. Now, with another child diagnosed with the condition, Norhaziqah Rosli is fighting to secure a future for him.